Resources for Marion
The Illinois School-to-Work Transition Guide is a comprehensive resource for transition-age students and their families as they plan for the transition from school to adult life. This user-friendly guide provides clear, up-to-date information about the...
NeuroJourney is an educational resource for parents, caregivers and clinicians navigating the ever-evolving needs of children with severe neurological impairment (SNI). You can find both practical and medical information and insights from parents and clinicians...
The National Association for Down Syndrome (NADS) serves individuals with Down syndrome and their families. NADS’ website provides a variety of webinars, publications and resources for the Chicago metropolitan area and beyond. NADS also offers...
Jack’s Basket supports new parents of a child with Down syndrome by providing information, a support system and a welcome basket to let them know they’re not alone. Baskets are available from the time of...
The eHomeCare program is a free online training program that aims to provide comprehensive information for those caring for children with a tracheostomy (trach) with/without a ventilator. The training is for: Nurses working in home-based...
Medicare is federal health insurance run by the Social Security Administration. This fact sheet from the Division of Specialized Care for Children (DSCC) explains the program’s eligibility and how to enroll. It also explains the...
Many children experience the death of a close family member or friend at some point during their childhood. The American Academy of Pediatrics’ website HealthyChildren.org provides information for parents about childhood grief, ways to help...
The loss of a child is never easy. The Funeral Service Foundation’s free guide “When a Child Dies: Planning Acts of Love & Legacy” offers guidance, support and inspiration to families saying goodbye. Topics include:...
The Funeral Service Foundation’s “Youth and Funerals” page provides free ebooks, printed booklets and webinars to help families discuss death and funerals with youth. The information can help families understand the role funerals play in...
In this video, nurses from Ann and Robert H. Lurie Children’s Hospital of Chicago describe and demonstrate emergency management for pediatric patients with tracheostomy (trach) tubes. The video covers: Prevention and assessment of emergency situations...