Non-English/Multilingual Resources Resources
The National Resources for Access, Independence, Self-Determination and Employment (RAISE) Technical Assistance Center provides technical assistance and resources to support youth and young adults with disabilities and their families during the transition to adulthood. RAISE provides information, toolkits, webinars and support to help individuals:
- Better understand vocational rehabilitation and independent living programs and services
- Communicate more effectively with transition, rehabilitation and other professionals
- Understand the Rehabilitation Act and how it supports employment, supported employment and independent living
- Develop an Individualized Plan for Employment
RAISE’s resources include:
- The RAISE Youth Engagement Toolkit Series
- Parent Centers
- Resources for self-advocates, families, partners and parent centers
Many of the resources are also available in Spanish.
Navigating Health Insurance and the Health Care System
The Patient Advocate Foundation (PAF) provides valuable information and understanding to patients navigating the healthcare system.
PAF’s Education Resource Library offers information on a wide variety of individual health and health insurance-related topics including:
- Finding and Selecting Insurance
- Making the Most of Your Health Insurance
- Engaging with Insurers: Appealing a Denial
- Patient Advocate Foundation Drug Formulary FAQ
Watch their short tutorial “Welcome to the Education Resource Library” to learn how to find and share materials. Many of the materials are available in English and Spanish.
PAF is also available by phone Monday – Friday, 7:30 a.m. – 4 p.m., at (800) 532-5274.
New to Seizures and Epilepsy Toolkit
Hearing about epilepsy and seizures for the first time can be frightening and confusing. The Epilepsy Foundation’s “New to Seizures and Epilepsy Toolkit” provides a starting point for individuals, parents and caregivers to learn about:
- What epilepsy is
- Available resources
- How to make the most of doctors’ visits
- How to take control of seizures
Individual fact sheets on topics including seizure first aid and developing your own seizure response plan are also available. All materials are available in English and Spanish.
NORD: National Organization for Rare Disorders
The National Organization for Rare Disorders (NORD) offers support, information and a variety of events for clinicians, researchers, patients and families affected by rare diseases.
NORD’s Resource Center provides patients and caregivers with free webinars, fact sheets, infographics, support and advocacy groups links, and referrals for rare disorders.
NORD’s RareCare Program website provides a list of financial assistance programs that can help patients obtain life-saving or life-sustaining medication they could not otherwise afford.
NORD’s State Resource Center contains local, state and national organizations listed by state or by topic offering free or low-cost services for people impacted by rare diseases.
NORD’s free, self-paced online course “From Records to Research: Making Sense of Health Data for Rare Diseases” provides help for understanding health data, research participation and how both contribute to improving treatments and care. The course is available:
Parent Institute Lectures for Families of Children With Hearing Loss
The Institute for Parents of Preschool Children Who Are Deaf or Hard of Hearing is a one-week program for parents of young children who have a significant hearing loss. It takes place on the campus of the Illinois School for the Deaf in Jacksonville each June.
Participating parents attend daily lectures by experts in the field to learn about raising a child with hearing loss. Lecture topics include the Individuals with Disabilities Education Act (IDEA), advocacy, communication options, language, assistive listening devices, literacy and amplification.
UIC’s Division of Specialized Care for Children (DSCC), a supporter of the Institute, has made these presentations available online so they can benefit more families of children with hearing loss. Visit the 2019 Parent Infant Institute Video Recordings page on the Illinois Early Hearing Detection and Intervention (EHDI) Program website.
People First: A Guide to Interacting With People With Disabilities
The Illinois Department of Human Services’ Division of Rehabilitation Services (IDHS/DRS) is dedicated to empowering people with disabilities in becoming full participants in our society.
With “People First: A Guide to Interacting with People With Disabilities,” IDHS/DRS provides general etiquette tips and information on people-first language to foster respect and inclusion for people with disabilities.
People’s Resource Center (PRC) serves DuPage County residents. It offers a food pantry, computer access, financial assistance, an art program, a clothes closet and more. Residents need to register to receive services.
Download the PRC flyer for a list of locations, services and times for:
- The food pantry
- The clothes closet
- Empowerment services
- Social services
The flyer is in English and Spanish.
PKU Resources from University of Louisville School of Medicine
The University of Louisville School of Medicine website provides a wide range of PKU (Phenylketonuria) resources to support families.
The Family PKU Booklet provides information for families after a positive newborn screening. Using illustrations and clear language, the booklet helps make complicated, scientific information easier to understand.
The site also includes:
- Caregiver and school preparation tips
- Nutrient trackers
- Downloadable PHE and protein log templates
- Recipes and low protein food suppliers
- PKU community resources
Postpartum Support International
Postpartum Support International (PSI) provides a worldwide network of peer support, information, professional trainings and coordinators in all U.S. states. Its mission is to promote awareness, prevention and treatment of mental health issues related to childbearing in every country worldwide. PSI has more than 400 local support volunteers who provide support, information, encouragement and connection with local providers and support groups.
PSI offers 50-plus free online support groups to connect with other parents, including groups for special needs and medically fragile parenting, birth trauma support, neonatal intensive care unit (NICU) postpartum parents and more. PSI also moderates closed Facebook groups for moms and dads.
PSI also has a helpline for anyone to get basic information, support and resources. You can call or text daily from 7 a.m. to 10 p.m. central standard time at:
- Call (800) 944-4773 for English and Spanish support
- Text in English to (800) 944-4773
- Text en Español to (971) 203-7773
Resources are available in English and Spanish.
Puentes de Esperanza (Bridges of Hope)
Hoyleton Youth & Family Services‘ Puentes de Esperanza (Bridges of Hope) serves Spanish-speaking families in Clinton, Madison, Monroe, Randolph and St. Clair counties. Puentes de Esperanza connects Hispanic families to community resources, including interpretation and translation, finding employment, immigration and citizenship information and other resources.
Puentes de Esperanza also:
- Partners with the Illinois Coalition for Immigrant and Refugee Rights (ICIRR) to help immigrants know their rights
- Hosts mobile events with the Illinois Secretary of State Department of Motor Vehicles