Medical/Health and Wellness Resources
The Humanitarian Foundation Grottoes International program helps cover the costs of dental treatment, including hospital and anesthesia costs, for children with Cerebral Palsy, Mental Retardation, Organ Transplants or Muscular Dystrophy and related neuromuscular disorders.
The Hydrocephalus Association provides information and resources for people of all ages living with or caring for someone with hydrocephalus.
The Illinois Society for the Prevention of Blindness (ISPB)
The Illinois Society for the Prevention of Blindness (ISPB) promotes vision and eye health in the state of Illinois. ISPB provides:
- Eye care education programs and information
- Youth replacement glasses and low-vision equipment reimbursement services
- Research grant opportunities
- Speakers and screening events
The Immigration Project provides individual attorney consultations and evaluations in Spanish and English on immigration issues in central and southern Illinois. Immigration attorneys and specialists travel to meet with clients in seven regional locations throughout downstate Illinois. They also have offices in Normal and Champaign.
The Immigration Project has a Facebook page and may be reached at (309) 829-8703 or info@immigrationproject.org.
The Journey Through Diagnosis: A Guide for Families of Children with a Genetic Condition
The Family Forum of the Region 4 Midwest Genetics Collaborative wrote this guide to provide information and support to families whose child has been diagnosed with a genetic condition. It is written from the family perspective and includes information they felt was important when facing a new diagnosis. The material includes advice and tips to help guide families on their journey.
The KASE Project aims to raise awareness and support for autism through community outreach in the Springfield area. Its programs include:
- PECS (Picture Exchange Communication) at the Park – an initiative to install picture communication boards at local parks and playgrounds.
- PALS (Parent Autism Life Support) – a caregiver support initiative for parents, siblings and caregivers of children and adults with autism in Sangamon County. PALS currently hosts a support group for moms.
- FLASH (Friends Learning and Sharing Hope) – an effort to bring adaptive sports to the Chatham community and beyond.
- SIBS – A Sibshops program for siblings of children with health, mental health and developmental needs.
The Kids Equipment Network (TKEN) is a non-profit organization connecting children with disabilities with new and gently-used durable, adaptive equipment at no cost. Illinois families with children from birth to 21 can fill out an application to request equipment. TKEN then seeks equipment matching the child’s needs. The family is invited to a fitting clinic when the equipment becomes available.
Volunteers provide free monthly clinics for custom-fitting equipment in Chicago and the suburbs. Families can request items including:
- Strollers
- Wheelchairs
- Bath and toilet systems
- Crutches
- Canes and more
The Kinda Guide is designed to be a weekly survival guide for parents and families that will include expert tips on remote learning, parenting advice, virtual camp activities, simple meal and snack ideas and at-home family adventures.
The Laurent Clerc National Deaf Education Center at Gallaudet University
The Laurent Clerc National Deaf Education Center at Gallaudet University is a federally funded center providing elementary and secondary education programs for deaf and hard-of-hearing students. The Clerc Center Online Community provides best-practice videos, research, toolkits and resources for families of deaf and hard-of-hearing children and the professionals who work with them.
Clerc Center resources include:
- The Language First Parent Guide, a step-by-step roadmap for parents with children who are deaf and hard of hearing
- Family-focused activities such as American Sign Language (ASL) classes, bilingual storybooks and more
The Little Resource Center in Carbondale
The Little Resource Center (TLRC) provides free health, safety, and well-being services to strengthen and empower families, parents, and caregivers. TLRC services and programs are free. Help includes infant and postpartum care items, classes and webinars on various wellness topics, and referrals to other needed services. The Little Resource Center’s support includes:
- Short-term diaper and formula assistance
- Events, classes and support groups for families, caregivers and expecting parents
- Referrals to healthcare providers, social service agencies and community-based agencies for resources
- Bilingual programming by appointment
For questions or more information, call (618) 534-3345 or email info@littleresourcecarbondale.org.
Para ayuda en español: (314) 730-4005