Medical/Health and Wellness Resources
Camp Erin Overnight Grief Camp
Camp Erin Chicago is part of a national bereavement program for youth grieving the death of a significant person in their lives. Free of charge for all families, Camp Erin combines traditional, fun camp activities with grief education and emotional support for children and teens ages 6 to 17 years old.
Camp Erin Chicago takes place in Delavan, Wisc., in July. Registration usually opens in December for the following summer. If you are interested in enrolling your child or family in Camp Erin, please email Camp Director Bryan Heidel at bheidel@nush.org, or call (773) 569.9553.
Camp Sunshine for Children with Life-Threatening Illnesses and Their Families in Maine
Camp Sunshine helps children with life-threatening illnesses and their families find hope, community and a safe space for recharging together. Located in Maine, the camp offers medical support and free, year-round camping sessions for children ages 21 and under, their siblings, parents and caregivers. Campers come from all over the United States, Canada, and other parts of the world. Bereavement sessions are also available for families who have experienced the death of a child from a supported illness.
Camp Sunshine offers sessions of varying lengths throughout the year. Supported conditions and diagnoses include:
- A brain tumor, cancer and retinoblastoma
- Kidney disease
- Sickle cell disease
- Hematologic conditions
- Phenylketonuria (PKU) and more
(217) 525-1736
Caring Conversations Toolkit for Families and Providers
The Pediatric Palliative Care Coalition (PPCC) offers a Caring Conversations Toolkit to help determine when and how to start a conversation about hospice or palliative care. Separate toolkits targeting the needs of families and providers are available.
Each toolkit offers a series of questions to consider in deciding if it is time to start a conversation about hospice or palliative care for a child with serious illness and how to navigate the discussion.
Caring for a Child with a Gastrostomy Video from St. Louis Children’s Hospital
The “Caring for My Child with a Gastrostomy” video from St. Louis Children’s Hospital provides information on understanding your child’s gastrostomy appliance and how to care for it at home.
This educational video focuses on the gastrostomy tube (g-tube), the gastrostomy button appliance and answering a variety of frequently asked questions.
“Caring for My Child with a Gastrostomy” is broken into segments and available in full. Be sure to select the appropriate video based on whether you want to learn about the gastrostomy tube (g-tube) or the gastrostomy button appliance.
Catholic Charities Social Services Archdiocese of Chicago
Catholic Charities Social Services Archdiocese of Chicago provides help including homelessness prevention, food and basic needs, and crisis assistance. needshelp and crisis services. It also connects people to other organizations that can help with emergency assistance in Chicago, suburban Cook County and Lake County. Services include:
- Burial and funeral assistance
- Case management services
- Emergency rental assistance
- Utility assistance
- Emergency shelter services
- Stabilization services (pharmaceutical assistance, transportation assistance, clothing vouchers)
The organization also provides family support programs, including child care and pregnancy and parenting support services, domestic violence support, behavioral health programs, and immigrant and refugee support.
CDC’s COVID-19 Vaccination Information
The Centers for Disease Control and Prevention (CDC) provides information for COVID-19 vaccination administration, storage and handling, reporting and patient education for each specific vaccine at www.cdc.gov/vaccines/covid-19/index.html.
CDC’s Developmental Milestones for Children
From birth to age 5, your child should reach milestones in how they play, learn, speak, act and move.
The Centers for Disease Control and Prevention (CDC) provides developmental milestones checklists to help track your child’s development and act early if you have a concern.
The CDC also has a free Milestone Tracker App with photos and videos that illustrate each developmental milestone. You can use the app to track your child’s development and find out what to do if you have concerns.
CEDA: Community and Economic Development Association of Cook County
CEDA: Community and Economic Development Association of Cook County offers a variety of services to families and individuals in need.
Its programs include:
- Utility bill assistance with gas, electric, water and furnace repair
- Home weatherization providing long-term home repair solutions to reduce energy costs and make homes more energy efficient
- Housing services including housing information counseling, education and advice for homebuyers, homeowners, renters and the homeless
- Services for women, infants and children including food, education and support for pregnant, breastfeeding and postpartum women, infants and children under age 5
Center for Parent Information and Resources (formerly NICHCY)
The Center for Parent Information and Resources (CPIR) is a central “hub” for the network of Parent Centers serving families of children with disabilities nationwide. Materials on CPIR’s website are user-centered and created for and by Parent Centers around the country to help provide support and services to the families they serve. Resources include parent guides, training materials, information on special education and transition planning, webinars and more. CPIR also provides information in Spanish to help parents understand specific disabilities, the special education process and where to find help.
CPIR also offers:
- A family-friendly resource library
- A monthly e-newsletter featuring new resources, upcoming events, and materials to share
- Native American resources
- The Office of Special Education Program (OSEP)’s Glossary of Common Individuals with Disabilities Education Act (IDEA) Terms in Spanish and in Korean
- An events calendar
- A Parent Center locator tool