Resource Directory /

Medical/Health and Wellness Resources

  • The Superhero Project

    The Superhero Project matches children facing serious illnesses, disabilities and complex medical needs with artists to create their superhero alter egos.

    The nonprofit interviews kids and teens about their superhero alter egos. Artists then design the characters the children have described, creating a visual representation of their strength, courage and resilience. Families then receive an inspiring poster of their superheroes.

    The Superhero Project is free and open to families around the world.

  • The University of Illinois Chicago (UIC) College of Dentistry Pediatric Special Needs Dentistry

    The University of Illinois Chicago (UIC) College of Dentistry Pediatric Dental Care provides comprehensive dental care for children including individuals with complex oral health needs and special developmental and behavioral care needs. Pediatric Dentistry clinics provide care for children from infancy through adolescence (under age 17), including:

    • Comprehensive oral health examinations, teeth cleaning, fluoride treatments, sealants, restorative procedures (fillings, crowns, etc.)
    • Extractions and minor surgical procedures
    • Urgent care (trauma, infection, etc.) and more

    These services can be completed using inhalation sedation (Nitrous oxide), moderate sedation and general anesthesia. Read more about pediatric services.

    Social stories are also available to help children with autism or sensory issues get ready for a dental visit:

     

  • Thumbuddy Special

    Thumbuddy Special is a non-profit organization that was started by a group of special education teachers and therapists to raise money to provide adaptive equipment for children with special needs.

    Thumbuddy Special supplies equipment such as wheelchairs, walkers, bath chairs, adapted bikes, ramps and computers. In addition, the nonprofit offers scholarships to children to attend local special recreation camps in the summer.

  • Title V Programs by State

    The Maternal and Child Health Services Block Grant, Title V of the Social Security Act, is a federal program that aims to improve the health of all women, children and families. Each state has a Title V program that serves children with special health care needs.

    The Maternal and Child Health Bureau of the Health Resources and Services Administration provides this list of state Title V program contact information.

  • Toilet Training Children With Special Needs – Early Intervention Clearinghouse

  • Toilet Training Children with Special Needs – HealthyChildren.org

    The American Academy of Pediatrics’ website HealthyChildren.org provides parents of children with disabilities information for determining when to start and how to begin the toilet-training process.

    The information includes:

    An overview of physical and developmental challenges and how they can impact toilet training
    Tips on when and how to begin toilet training
    The importance of having a parent support network and focusing on celebrating your child’s overall growth, not the mistake

    This information is also available in Spanish.

  • Touch of Nature Outdoor Education Center in Makanda

    Touch of Nature Outdoor Education Center in the Shawnee National Forest in southern Illinois offers a diverse range of camps, retreats, programs and activities for children and adults of all abilities. Touch of Nature Outdoor Education Center programs include:

  • Tracheostomy Care at Home

    Ann and Robert H. Lurie Children’s Hospital’s Tracheostomy Care at Home page aims to help parents learn how to take care of their child’s tracheostomy (trach).  Topics include:

    • The Tracheostomy
    • Tracheostomy Skin Care
    • How to Suction the Tracheostomy
    • How to Change a Tracheostomy Tube
    • Emergency Care

    Please note: This information is for informational purposes only and is not intended to substitute in any way for medical education, training, treatment, advice or diagnosis by a healthcare professional.

  • Transition to Employment & Adult Services

    The Arc of Illinois Family to Family Health Information and Education Center’s Family Transition Manual provides help for families of young adults with developmental disabilities preparing to transition from school and services for children to the world of work and adult services.

  • Travel Guide for Children with Medical Complexity

    Traveling with a child with medical complexity can be challenging. With extra planning, a family vacation can be a memorable and enjoyable experience. This travel guide from the Courageous Parents Network offers practical advice on choosing a location, what and how to pack the medical supplies your child needs, tips for traveling by car and airplane, and what precautions to take should your child have a medical emergency while on vacation.

    The guide is available in English and Spanish.