Medical/Health and Wellness Resources
Sleep Help for Individuals With ASD
Autism Speaks offers parents helpful tips for establishing good sleep hygiene and tool kits targeting sleep strategies for children, teens and adults on the spectrum.
SNAP Online Purchasing Program
The Illinois Department of Human Services is offering online purchasing for more than 1.8 million Supplemental Nutrition Assistance Program (SNAP) customers across a million households.
Online SNAP will give families easier access to food during the COVID-19 crisis and beyond. Busy parents will no longer have to stress about how they can pick their kids up from school and make it to the grocery store before dinner. And those working multiple jobs or the late shift won’t have to rush to make it before the store closes. All families will have another option to independently secure the food they need.
The Social Security Administration (SSA) offers toolkits for people with sickle cell disease and professionals navigating the disability application and evaluation process. The toolkits provide detailed information, examples of the types of medical evidence required for individuals with sickle cell disease, and tips to help with the disability application and evaluation process:
Southern Illinois University Center for Autism Spectrum Disorders in Carbondale
The Center for Autism Spectrum Disorders (CASD) at Southern Illinois University is an interprofessional training and research center providing information and services to area residents with autism spectrum disorder (ASD) and their families. CASD offers ASD screenings, clinical services for children, adolescents and adults, webinars and support.
CASD faculty and students provide a variety of training and services, many at no cost to families and their children. Help is available in the following areas:
- Speech/language
- Social skills
- Emotional-behavioral concerns
- Toileting
- Sleep
- Picky eating and more
For more information, call (618) 453-7130 or email autism@siu.edu.
Spanish Language Resources for Families & Children Who are Deaf or Hard of Hearing
Hands & Voices (Manos y Voces): Unbiased parent-to-parent support and Spanish-language resources for families and children who are Deaf or hard of hearing.
American Speech-Language-Hearing Association (La Asociación del Habla, Lenguaje y Audición): The organization provides Spanish-language information for the public and families with children who are deaf or hard of hearing.
Gallaudet University (Resources for Hispanic Deaf and Hard of Hearing Population): Resources providing contacts, publishers/distributors, and online links to assist Spanish-speaking individuals who are deaf or hard of hearing.
Special Camps Overnight Camps for Children, Youth and Adults with Developmental Disabilities
Special Camps provide opportunities for children and adults with intellectual disabilities to experience overnight camp. Special Camps are volunteer-run and offer trained staff and 24-hour nursing for children and adults with disabilities who could not otherwise attend a similar camp due to physical, medical or developmental needs. Financial scholarships are available to campers in need.
Campers can make friends, increase independence and try new activities. Special Camps take place each year at Camp Red Leaf in Ingleside.
Camp registration typically opens in early February. For questions, please contact Colleen McDonald at (630) 690-0944 or colleen.scamps@icloud.com.
Special Education and Inclusion in Early Care and Education
The Illinois Early Learning Project provides this Special Education and Inclusion in Early Care and Education resource list for early childhood special education and inclusive childcare for children ages 3 to 5 years old. The resources include tip sheets on choosing child care for infants and toddlers, choosing a preschool, inclusion in preschool classrooms and special education assessment for preschool-aged children.
Special Education Assessment Tip Sheet and Resource List
Family members and early care and education providers are adults who notice when the children in their care may have disabilities or developmental delays and would benefit from special education services.
The Illinois Early Learning Project’s Special Education Assessment tip sheet series is a helpful tool for learning more about the steps in that process. The IEL also provides an Assessment for Special Education resource list.
Equip for Equality has a toll-free Special Education Helpline to help families get appropriate education services for their children. The Helpline can assist by providing:
- Someone to talk to about your questions and concerns
- Information sheets on frequently asked questions
- Sample letters and forms
- Referrals
- Other assistance as needed
Contact the Helpline at 1-866-KIDS-046 (1-866-543-7046) or specialed@equipforequality.org.
Special Father’s Network is a dad-to-dad mentoring program for fathers raising children with special needs.
The program connects new fathers with special needs children to another father (a Mentor Father) who has experienced a similar situation. The program matches Mentor Fathers as closely as possible based on the child’s special needs, gender, ethnicity, socioeconomic group and relationship to the child e.g., .father, stepfather, grandfather).
The Special Father’s Network is available through the 21st Century Dads Foundation, which raises awareness and resources for greater father involvement and seeks to inspire dads to be present, caring and nurturing.