Health Condition and Disability-Specific Resources
flok for Individuals with an Inherited Metabolic Disorder
Formerly known as PKU News, flok provides resources, support and an app for individuals with an inherited metabolic disorder and the people and clinicians who care for them. These conditions include Classical Homocystinuria (HCU), Maple Syrup Urine Disease (MSUD), Phenylketonuria (PKU), Tyrosinemia and more.
The flok website includes:
- Opportunities to connect and share in person and virtually
- Annual flok Family Camps
- Food science information guided by a staff dietitian and collaborations with partner organizations and Genetic Metabolic Dietitians International
- The flok app for individuals managing an inherited disorder of protein metabolism
Foundation for Hearing and Speech Resources
The Foundation for Hearing and Speech Resources (FHSR) is a private, non-profit, grassroots organization dedicated to improving the quality of life for all children affected by hearing and communication disorders.
Parent resources and programming include:
Free American Sign Language Classes at Moraine Valley Community College in Palos Hills
Moraine Valley Community College (MVCC) offers free American Sign Language (ASL) classes for families who have children ages birth through high school who are deaf or hard of hearing. Deaf instructors teach the classes in sign language and written English. MVCC serves residents in Moraine Valley and Cook County.
To register for the classes and get more details, email ASL@morainevalley.edu.
Friends of Man is a non-profit that uses 100% of donations for charitable assistance. The charity receives applications requesting mobility equipment, prosthetics, home modifications, medical equipment, hearing aids, basic needs and much more from referring professionals. Referring professionals include caseworkers, case managers, healthcare workers, social workers, school counselors, teachers and clergy who apply on behalf of their patients and clients.
In addition to the assistance listed above, Friends of Man can provide assistance nationwide for adaptive equipment, assistive technology, lift chairs, mobility equipment, orthopedic braces and shoes, stairlifts, vehicle adaptations and wheelchair ramps.
More details are on the Friends of Man Eligibility page.
Get Covered Illinois – The Official Health Insurance Marketplace Resource
Get Covered Illinois is the health insurance Marketplace resource for the state of Illinois. Get Covered Illinois provides information about health insurance coverage provided under the Affordable Care Act (ACA).
Get Covered Illinois provides:
- Information and support to help Illinois residents understand insurance and the importance of health insurance coverage
- Access to health plans through Healthcare.gov
- Free enrollment help from Get Covered Illinois Navigators by phone or in person in multiple languages and in your community
Get Covered Illinois is a division of the Illinois Department of Insurance (IDOI).
GiGi’s Playhouse: Down Syndrome Achievement Centers
GiGi’s Playhouse: Down Syndrome Achievement Centers provide free, nationwide on-site and virtual educational, therapeutic-based and career development programs for individuals with Down syndrome, their families and the community. Programs are available for individuals of all ages focusing on speech and language, social skills, cooking and fitness.
GiGi’s Playhouse Illinois locations include:
- Chicago
- Deerfield
- Fox Valley
- Hoffman Estates
- McHenry County
- Quad Cities
- Rockford
- Tinley Park
GiGi’s Virtual Playhouse offers opportunities to build relationships and community connections and access free programming and resources tailored for individuals with Down syndrome. The playhouse serves individuals with Down syndrome of all ages, expecting moms and dads, caregivers, siblings, parents, grandparents, doctors, educators, volunteers and more.
GiGi’s Virtual Playhouse provides a variety of programs focused on therapeutic needs, educational needs, career development and global acceptance. You can log in to the virtual playhouse to access on-demand programs for all ages, resources for supporting a loved one with Down syndrome and communities of other parents, self-advocates and volunteers.
Give an Hour – Rare Caregivers
Give an Hour aims to create resilient communities of support for rare disease caregivers and families. Through one-on-one peer support, group support, professional training and research, Give an Hour strives to build a sustainable support system for rare caregivers.
Visit the Give an Hour Rare Caregivers website to find peer support, self-care tips, support groups and more.
Global Genes is a non-profit organization dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally. It aims to connect, empower and inspire the rare disease community.
The Global Genes website includes a RARE Portal, which is an online community for patients, caregivers and more to share resources and create discussion groups.
Grupo SALTO (Sociedad de Autismo Latina Trabajando con Optimismo) aims to provide support in Spanish for Latino families who have children who are differently abled, with a focus on autism.
Grupo SALTO provides culturally and linguistically appropriate training, education and services.