Resource Directory /

General Resources

  • The Autism Program of Illinois (TAP)

    The Autism Program of Illinois (TAP) Service Network is a collaboration of five universities and 10 organizations that together operate 20 centers across the state to provide services to children, families, educators, childcare providers, and medical professionals.

    Illinois residents can participate in TAP’s Advocating for Supports to Improve Service Transitions (ASSIST) Training Program. The training features twelve modules focused on helping families advocate for adult services on behalf of their child or young adult on the autism spectrum. Each module features an expert-led presentation and time for discussion.

    Topics  include:

    Guardianship and alternatives to guardianship
    Medicaid waiver services
    Social Security benefits
    Health insurance
    Special needs trusts
    Post-secondary education and employment

  • The Autism Program of Illinois (TAP) Service Center at CTF Illinois

    The Autism Program of Illinois (TAP) Service Center at CTF Illinois provides services and support to individuals with autism and developmental disabilities and their families. CTF Illinois family and community resource rooms are located in in both Charleston and Olney.

    TAP at CTF serves Coles, Cumberland, Edgar, Effingham, Fayette, Clark, Moultrie, Douglas, Shelby, Clay, Richland, Crawford and Lawrence counties. Services include:

    Family nights and new diagnosis family orientation
    Play groups for children under 3
    Social skills and monthly support groups
    Food and nutrition-related consultations

  • The Catalyst Center

    National center dedicated to improving health care insurance and financing for Children and Youth with Special Health Care Needs (CYSHCN).

  • The Chicago Lighthouse

    The Chicago Lighthouse is a social service organization serving the blind, visually impaired, disabled and veteran communities. It provides vision rehabilitation services, education, employment opportunities and assistive technology for people of all ages throughout Chicagoland.

  • The Colette Louise Tisdahl Foundation

    The Colette Louise Tisdahl Foundation provides support and financial help to families in crisis due to pregnancy complications, premature birth/neonatal intensive care unit stay and loss. This financial assistance may help cover:

    Childcare
    Medical bills
    Transportation costs
    Rent/mortgage and utilities
    Post-loss/funeral/burial expenses
    Grief counseling (individual, couple and family)

    Visit the Colette Louise Tisdahl Foundation website for more details.

  • The Diaper Bank of Southern Illinois

    The Diaper Bank of Southern Illinois serves as a central location to collect and store donated diapers. The Diaper Bank partners with local service agencies to distribute diapers to low-income children and their families.

    To request diapers, the Diaper Bank of Southern Illinois requires that the agency has an ongoing relationship with the client and has screened for need.  Agencies may contact diaperbanksi@gmail.com or call (618) 549-2148, ext. 110.

  • The Dream Factory

    The Dream Factory is a volunteer-driven children’s wish-granting organization. Volunteers raise funds in their communities to grant dreams to local children ages 3 through 18 who have a life-threatening illness or are critically and chronically ill. Dreams are granted through local chapters. Referrals can be made by:

    A parent or legal guardian of an ill child
    A treating physician of an ill child
    The ill child

    In Illinois, contact the Dream Factory of Central Illinois at centralillinois@dreamfactoryinc.org. You can find other local chapters on the Dream Factory website.

  • The Guthrie-Koch Scholarship for Individuals with Certain Metabolic Disorders

    The Guthrie-Koch Scholarship from flok is for individuals with one of several metabolic disorders. The scholarship is for students demonstrating character, academic achievement and engagement with their community, and who are pursuing post-secondary educational or vocational opportunities. Students from any country can apply. Scholarship applications open by mid-December each year. Applications are due in mid-March.

    To be eligible for the scholarship, applicants must have one of these metabolic disorders:

    Classical HCU
    Maple Syrup Urine Disease (MSUD)
    An Organic Acidemia
    Phenylketonuria (PKU)
    Tyrosinemia
    Urea Cycle Disorder (UCD)

  • The Immigration Project

    The Immigration Project provides individual attorney consultations and evaluations in Spanish and English on immigration issues in central and southern Illinois. Immigration attorneys and specialists travel to meet with clients in seven regional locations throughout downstate Illinois. They also have offices in Normal and Champaign.

    The Immigration Project has a Facebook page and may be reached at (309) 829-8703 or info@immigrationproject.org.

  • The Kids Equipment Network

    The Kids Equipment Network (TKEN) is a non-profit organization connecting children with disabilities with new and gently-used durable, adaptive equipment at no cost. Illinois families with children from birth to 21 can fill out an application to request equipment. TKEN then seeks equipment matching the child’s needs. The family is invited to a fitting clinic when the equipment becomes available.

    Volunteers provide free monthly clinics for custom-fitting equipment in Chicago and the suburbs. Families can request items including:

    • Strollers
    • Wheelchairs
    • Bath and toilet systems
    • Crutches
    • Canes and more