General Resources
National center dedicated to improving health care insurance and financing for Children and Youth with Special Health Care Needs (CYSHCN).
The Center for Courageous Kids Summer Camps and Family Retreats
The Center for Courageous Kids (CKC) offers free family retreat weekends and overnight summer camp sessions for youth ages 5 to 17 with complex medical conditions and disabilities. CKC welcomes children with a wide range of conditions, including heart/cardiovascular disease, blood disorders, sickle cell disease, spina bifida, and more. The camp provides 24-hour medical coverage, an on-site medical center, and program and medical staff with training and experience in all aspects of medical camping.
The Center for Courageous Kids is open to youth ages 5 to 17 diagnosed with one of the illnesses/conditions it serves and immediate family members. To learn more about the camp, you can also:
The Chicago Lighthouse is a social service organization serving the blind, visually impaired, disabled and veteran communities. It provides vision rehabilitation services, education, employment opportunities and assistive technology for people of all ages throughout Chicagoland. It also provides national and statewide resources for college, brailler repair, employment, recreation, service animals and more.
The organization’s Lader Family Scholarship Program is open to Illinois residents who are blind or visually impaired, as well as Chicago Lighthouse employees who are blind, visually impaired, have another disability or are veterans. You can learn more about the Lader Family Scholarship and other scholarship opportunities on the Chicago Lighthouse website.
The Colette Louise Tisdahl Foundation
The Colette Louise Tisdahl Foundation provides support and financial help to families in crisis due to pregnancy complications, premature birth/neonatal intensive care unit stay and loss. This financial assistance may help cover:
- Childcare
- Medical bills
- Transportation costs
- Rent/mortgage and utilities
- Post-loss/funeral/burial expenses
- Grief counseling (individual, couple and family)
Visit the Colette Louise Tisdahl Foundation website for more details.
The Diaper Bank of Southern Illinois
The Diaper Bank of Southern Illinois serves as a central location to collect and store donated diapers. The Diaper Bank partners with local service agencies to distribute diapers to low-income children and their families.
To request diapers, the Diaper Bank of Southern Illinois requires that the agency has an ongoing relationship with the client and has screened for need. Agencies may contact diaperbanksi@gmail.com or call (618) 549-2148, ext. 110.
The Dream Factory is a volunteer-driven children’s wish-granting organization. Volunteers raise funds in their communities to grant dreams to local children ages 3 through 18 who have a life-threatening illness or are critically and chronically ill. Dreams are granted through local chapters. Referrals can be made by:
- A parent or legal guardian of an ill child
- A treating physician of an ill child
- The ill child
In Illinois, contact the Dream Factory of Central Illinois at centralillinois@dreamfactoryinc.org. You can find other local chapters on the Dream Factory website.
The Guthrie-Koch Scholarship for Individuals with Certain Metabolic Disorders
The Guthrie-Koch Scholarship from flok is for individuals with one of several metabolic disorders. The scholarship is for students demonstrating character, academic achievement and engagement with their community, and who are pursuing post-secondary educational or vocational opportunities. Students from any country can apply. Scholarship applications open by mid-December each year. Applications are due in mid-March.
To be eligible for the scholarship, applicants must have one of these metabolic disorders:
- Classical HCU
- Maple Syrup Urine Disease (MSUD)
- An Organic Acidemia
- Phenylketonuria (PKU)
- Tyrosinemia
- Urea Cycle Disorder (UCD)
The Immigration Project provides individual attorney consultations and evaluations in Spanish and English on immigration issues in central and southern Illinois. Immigration attorneys and specialists travel to meet with clients in seven regional locations throughout downstate Illinois. They also have offices in Normal and Champaign.
The Immigration Project has a Facebook page and may be reached at (309) 829-8703 or info@immigrationproject.org.
The KASE Project
The KASE Project aims to raise awareness and support for autism through community outreach in the Springfield area. Its programs include:
- PECS (Picture Exchange Communication) at the Park – an initiative to install picture communication boards at local parks and playgrounds.
- PALS (Parent Autism Life Support) – a caregiver support initiative for parents, siblings and caregivers of children and adults with autism in Sangamon County. PALS currently hosts a support group for moms.
- FLASH (Friends Learning and Sharing Hope) – an effort to bring adaptive sports to the Chatham community and beyond.
- SIBS – A Sibshops program for siblings of children with health, mental health and developmental needs.
The Kids Equipment Network (TKEN) is a non-profit organization connecting children with disabilities with new and gently-used durable, adaptive equipment at no cost. Illinois families with children from birth to 21 can fill out an application to request equipment. TKEN then seeks equipment matching the child’s needs. The family is invited to a fitting clinic when the equipment becomes available.
Volunteers provide free monthly clinics for custom-fitting equipment in Chicago and the suburbs. Families can request items including:
- Strollers
- Wheelchairs
- Bath and toilet systems
- Crutches
- Canes and more