General Resources
Sibling Grief and Bereavement Toolkit for Children and Teens
The Pediatric Palliative Care Coalition’s (PPCC) Sibling Grief and Bereavement Toolkit aims to address the needs and concerns of children and teens who have experienced the death of their sibling with medical complexities. The toolkit provides information to help adults understand how children and teens may process their grief and how to provide comfort to help them heal.
The toolkit can help with:
- The many feelings siblings might experience
- Therapeutic activities families can do together
- More resources for encouraging and guiding conversations
The Pediatric Palliative Care Coalition (PPCC) and Courageous Parents Network (CPN) provide resources to help parents, caregivers and medical professionals focus on giving special attention to siblings who are living and sharing their lives with a brother or sister with medical complexities.
Their Sibling Support Toolkit provides videos, activities, podcasts, a guided pathway and other resources to support parents and siblings as they navigate the ups, downs, setbacks and joys that make up their day-to-day lives.
Sign Language Interpreter Directory
The Illinois Deaf and Hard of Hearing Commission maintains a directory of sign language interpreters. You can search the directory by an interpreter’s name or by region/county.
Sleep Help for Individuals With ASD
Autism Speaks offers parents helpful tips for establishing good sleep hygiene and tool kits targeting sleep strategies for children, teens and adults on the spectrum.
Smart911 allows individuals to provide critical details about themselves and family members so that in emergencies 911 call takers have the information they need to quickly assess and address special concerns or safety needs.
Smart911 is a free, private and secure nationwide service that automatically delivers your safety profile to local law enforcement, medical and fire responders and public safety agencies that have installed the Smart911 technology. To determine if Smart911 is available in your city or town, visit the SMART911 website, scroll to the bottom and click “Find Services in Your Area.”
SNAP Online Purchasing Program
The Illinois Department of Human Services is offering online purchasing for more than 1.8 million Supplemental Nutrition Assistance Program (SNAP) customers across a million households.
Online SNAP will give families easier access to food during the COVID-19 crisis and beyond. Busy parents will no longer have to stress about how they can pick their kids up from school and make it to the grocery store before dinner. And those working multiple jobs or the late shift won’t have to rush to make it before the store closes. All families will have another option to independently secure the food they need.
The Social Security Administration (SSA) offers toolkits for people with sickle cell disease and professionals navigating the disability application and evaluation process. The toolkits provide detailed information, examples of the types of medical evidence required for individuals with sickle cell disease, and tips to help with the disability application and evaluation process:
Southern Illinois University Center for Autism Spectrum Disorders in Carbondale
The Center for Autism Spectrum Disorders (CASD) at Southern Illinois University is an interprofessional training and research center providing information and services to area residents with autism spectrum disorder (ASD) and their families. CASD offers ASD screenings, clinical services for children, adolescents and adults, webinars and support.
CASD faculty and students provide a variety of training and services, many at no cost to families and their children. Help is available in the following areas:
- Speech/language
- Social skills
- Emotional-behavioral concerns
- Toileting
- Sleep
- Picky eating and more
For more information, call (618) 453-7130 or email autism@siu.edu.
Special Connections of Grundy County
Special Connections of Grundy County promotes inclusion, self-determination and learning for people with disabilities in Grundy County. Programs include a wide range of Special Olympics athletics, arts and crafts, movies, games, picnics, parties, dances and family support throughout the year.
Special Father’s Network is a dad-to-dad mentoring program for fathers raising children with special needs.
The program connects new fathers with special needs children to another father (a Mentor Father) who has experienced a similar situation. The program matches Mentor Fathers as closely as possible based on the child’s special needs, gender, ethnicity, socioeconomic group and relationship to the child e.g., .father, stepfather, grandfather).
The Special Father’s Network is available through the 21st Century Dads Foundation, which raises awareness and resources for greater father involvement and seeks to inspire dads to be present, caring and nurturing.