General Resources
Sesame Street in Communities is an online community that provides multimedia tools in both English and Spanish for parents, caregivers and providers to support children from birth to age 6.
The site covers a wide range of topics including school readiness, healthy minds and bodies, emergency planning and tough issues such as divorce, hunger and other traumatic experiences. It features videos, activities, printables and digital interactives fearing Sesame Street characters.
Shady Oaks Camp is a non-profit, non-denominational, volunteer-driven organization serving children and adults with a wide range of disabilities. The summer camp provides fun activities, field trips and learning for individuals ages 5 and older. Campers must have an active Shady Oaks membership to attend camp.
See the Shady Oaks’ FAQ page for more information. For other questions, please contact soc16300@sbcglobal.net or (708) 301-0816.
Sibling Grief and Bereavement Toolkit for Children and Teens
The Pediatric Palliative Care Coalition’s (PPCC) Sibling Grief and Bereavement Toolkit aims to address the needs and concerns of children and teens who have experienced the death of their sibling with medical complexities. The toolkit provides information to help adults understand how children and teens may process their grief and how to provide comfort to help them heal.
The toolkit can help with:
- The many feelings siblings might experience
- Therapeutic activities families can do together
- More resources for encouraging and guiding conversations
The Pediatric Palliative Care Coalition (PPCC) and Courageous Parents Network (CPN) provide resources to help parents, caregivers and medical professionals focus on giving special attention to siblings who are living and sharing their lives with a brother or sister with medical complexities.
Their Sibling Support Toolkit provides videos, activities, podcasts, a guided pathway and other resources to support parents and siblings as they navigate the ups, downs, setbacks and joys that make up their day-to-day lives.
Sign Language Interpreter Directory
The Illinois Deaf and Hard of Hearing Commission maintains a directory of sign language interpreters. You can search the directory by an interpreter’s name or by region/county.
Sleep Help for Individuals With ASD
Autism Speaks offers parents helpful tips for establishing good sleep hygiene and tool kits targeting sleep strategies for children, teens and adults on the spectrum.
Smart911 allows individuals to provide critical details about themselves and family members so that in emergencies 911 call takers have the information they need to quickly assess and address special concerns or safety needs.
Smart911 is a free, private and secure nationwide service that automatically delivers your safety profile to local law enforcement, medical and fire responders and public safety agencies that have installed the Smart911 technology. To determine if Smart911 is available in your city or town, visit the SMART911 website, scroll to the bottom and click “Find Services in Your Area.”
The Social Security Administration (SSA) offers toolkits for people with sickle cell disease and professionals navigating the disability application and evaluation process. The toolkits provide detailed information, examples of the types of medical evidence required for individuals with sickle cell disease, and tips to help with the disability application and evaluation process:
Southern Illinois University Center for Autism Spectrum Disorders in Carbondale
The Center for Autism Spectrum Disorders (CASD) at Southern Illinois University is an interprofessional training and research center providing information and services to area residents with autism spectrum disorder (ASD) and their families. CASD offers ASD screenings, clinical services for children, adolescents and adults, webinars and support.
CASD faculty and students provide a variety of training and services, many at no cost to families and their children. Help is available in the following areas:
- Speech/language
- Social skills
- Emotional-behavioral concerns
- Toileting
- Sleep
- Picky eating and more
For more information, call (618) 453-7130 or email autism@siu.edu.
Special Camps Overnight Camps for Children, Youth and Adults with Developmental Disabilities
Special Camps provide opportunities for children and adults with intellectual disabilities to experience overnight camp. Special Camps are volunteer-run and offer trained staff and 24-hour nursing for children and adults with disabilities who could not otherwise attend a similar camp due to physical, medical or developmental needs. Financial scholarships are available to campers in need.
Campers can make friends, increase independence and try new activities. Special Camps take place each year at Camp Red Leaf in Ingleside.
Camp registration typically opens in early February. For questions, please contact Colleen McDonald at (630) 690-0944 or colleen.scamps@icloud.com.