General Resources
Miracle Flights provides free commercial airline tickets to pediatric patients ages 17 and under in need of life-changing medical care far from home. Families must meet certain requirements and apply online using the online application for requesting each flight.
The organization also provides flights for service dog retrieval and/or training. Miracle Flights’ service dog program is open to all individuals who need help retrieving/training their service dog.
Miracle League of Central Illinois
The Miracle League of Central Illinois is a league for children and adults with disabilities that enables them to play baseball on a specially designed adaptive field. The Miracle League of Central Illinois and the town of Normal, Ill., partner to provide this program to a wide range of participants. Scholarships are available to help youth of all abilities participate.
Visit the Miracle League of Central Illinois website to learn more.
Miracle League of Joliet
The Miracle League of Joliet is a non-profit baseball league for children and young adults (ages 4 to 19) with disabilities. The rules emphasize participation, with every player getting a turn to bat in each inning. A volunteer “Buddy” assists each player at bat and on the field.
League games take place on a custom-designed field featuring a rubberized turf, free from obstacles to ensure players can round the bases and play baseball safely. Visit the Miracle League of Joliet website for more details.
Muscular Dystrophy Association
The Muscular Dystrophy Association (MDA) provides comprehensive information and resources to help with understanding, managing and living day-to-day with muscular dystrophy and related neuromuscular diseases.
MDA programs and resources include:
- The MDA Resource Center providing one-on-one support by phone or email for individuals and families looking for resources, activities and more
- Nationwide summer camps
- Resources for caregivers
- Community education and services
Northern Illinois Food Bank has launched My Pantry Express, an online source for groceries. The program allows families in need of food assistance to choose specific grocery items and pick them up at a preferred participating location.
Pickup locations are available in the following counties: DeKalb, DuPage, Lake, Will, Winnebago.
National Alliance for Caregiving
The National Alliance for Caregiving (NAC) is a non-profit coalition of national organizations providing research, advocacy and innovation to make life better for family caregivers. The Alliance’s research, programs and resources include:
- Guidebooks including its Circle of Care Guidebook for Caregivers of Children with Rare and/or Serious Illnesses
- Stories from caregivers nationwide
- Research, data and reports focusing on different aspects of caregivers
- Advocacy and policy initiatives
National Alliance for Children’s Grief (NACG)
The National Alliance for Children’s Grief (NACG) raises awareness about the needs of children and teens who are grieving a death and provides education and resources for anyone who supports them. NACG resources include:
- Free GriefTalk Live events
- Webinars and continuing education
- Peer networking
National Association for Down Syndrome
The National Association for Down Syndrome (NADS) serves individuals with Down syndrome and their families. NADS’ website provides a variety of webinars, publications and resources for the Chicago metropolitan area and beyond.
NADS also offers a “Congratulations Basket and Referral Program.” Please note that the organization can only deliver baskets to specific Chicago-area hospitals.
National Center on Deaf-Blindness
The National Center on Deaf-Blindness (NCDB) is part of a network of projects for children and youth with deaf-blindness (birth through 21) providing information and learning and development tools for families and educators. NCDB resources include:
- An overview of deaf-blindness
- Practice guides and professional development
- Spanish resources
NCDB includes state deaf-blind projects in every state, Puerto Rico, the District of Columbia, the Pacific Basin and the Virgin Islands.
National Down Syndrome Society
The National Down Syndrome Society (NDSS) aims to empower individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities and shifting public perceptions.
Its resources include information on Down syndrome across the lifespan as well as in the areas of aging, caregiving, education, employment, health and more.