General Resources
Disability EmpowHer Network is a non-profit run by and for girls and women with disabilities that connects, motivates, and guides girls and women to learn and develop to their highest potential and have the confidence to lead. The group, based in Rochester, NY, focuses on building skills and community by connecting girls with disabilities with successful women with disabilities to serve as mentors and role models.
Resources and programs include:
- A stories blog
- EmpowHer Camp (a year-long program)
- Letter from a role model
- Get a Mentor
- EmpowHer Expressions, a public speaking and career coaching program
Disability Information and Access Line
The Disability Information and Access Line (DIAL) helps people with disabilities connect to local community resources that support independent living. Dial provides information on essential services such as transportation, housing support, disability rights, and more.
The hotline’s trained staff are available to:
- Help find local vaccination locations
- Set up a vaccination appointment
- Connect with local COVID testing options
- Connect callers to local services, such as accessible transportation, housing support, disability rights and other independent living resources
Call, text or videophone DIAL Monday through Friday from 7 a.m. to 8 p.m. at (888) 677-1199.
You can also email the hotline at DIAL@n4a.org or start an online chat with an information specialist.
You can also connect to an agent in American Sign Language.
Disability Resource Center in Joliet
The Disability Resource Center provides advocacy, peer support groups, S.K.I.L.L.S. independent living classes, visual impairment services, seminars, workshops and more for people with disabilities in Will and Grundy counties.
Programs also include:
- Deaf and hard of hearing services
- Information and referral (I&R) for accessible housing, where to buy assistive devices, how to secure a sign language interpreter and more
- Assistive technology for children up to age 23
- Personal assistance program and information
Disaster Preparedness for Children and Youth with Special Healthcare Needs
The American Academy of Pediatrics (AAP) provides information on how families of children with special healthcare needs can prepare for potential emergencies and disasters in their area and identify what each child would need to safely prepare for and cope with the disaster.
AAP provides emergency preparedness information and resources, including:
- Tips for helping children cope and adjust after a disaster
- Links to organizations like the Cincinnati Children’s Hospital offering booklets, checklists and other resources you can print or download
- Videos on preparing for an emergency or potential disaster
Disaster Safety for People with Disabilities
The American Red Cross provides information and inclusive tools for creating an emergency plan tailored to your family’s specific needs regarding mobility, hearing, learning or seeing disabilities.
The step-by-step tools are designed to help individuals be informed, prepare for and respond to disasters or other urgent situations.
Discovery Center Museum in Rockford
The Discovery Center Museum is a fully accessible, nationally recognized children’s museum in Rockford, featuring over 300 hands-on exhibits. It follows the Smithsonian Institute’s accessibility guidelines, providing ramps, accessible restrooms, an elevator, and ample space around exhibits. An adult changing table and wheelchairs are also available. Guests can explore ways to make bubbles, a calm space, a giant soft brick playland, and a multi-sensory space to discover the science of optics and light.
To learn more, contact information@discoverycentermuseum.org or call (815) 963-6769.
Division of Rehabilitation Services (DRS)
The Illinois Department of Human Services Division of Rehabilitation Services (DRS) helps people with disabilities achieve full community participation through employment, education and independent living opportunities.
Use the DORS office locator to find an office near you or call:
- (877) 581-3690 Voice
- (866) 264-2149 TTY
- (312) 957-4881 (Please note this is a video phone number)
You can also apply online for DRS services.
Do It for the Love inspires hope and healing through music. The non-profit organization grants live concert wishes for people with life-threatening illnesses, children with severe challenges and wounded veterans. You can apply for yourself or your child or nominate someone for a live music wish.
Dove, Inc. provides a variety of outreach programs, financial assistance and resources to residents in Macon, Shelby, Moultrie, Piatt and DeWitt counties.
Dove Financial Assistance (DFA) may be able to provide emergency help with water, power, eye prescriptions, dental needs and some prescription medications.
DFA also works with the Energy Assistance Fund to help people with their heating and cooling bills through the “Warm Neighbors, Cool Friends Program” in Macon, DeWitt and Piatt Counties.
Down Syndrome Association of Greater St. Louis (DGAGSL) and Metro-East/Southern Illinois Chapters
The Down Syndrome Association of Greater St. Louis (DGAGSL) serves, supports and celebrates the lives of individuals with Down syndrome and their families. DGAGSL and its chapters provide educational programs, resources and events to help increase awareness and connect families with the help they need for every stage of their child’s life.
These DGAGSL community groups provide support and coordinate events in southern Illinois and the greater St. Louis area:
- DSAGSL Metro-East Illinois Community Group serves Belleville, O’Fallon, Shiloh, and surrounding areas. Contact Abigail Bosslet at abigail@dsagsl.org or call (314) 833-7560.
- DSAGSL Southern Illinois Community Group serves Carbondale, Creal Springs and surrounding areas. Contact Abigail Bosslet for information.
- DSAGSL Down Syndrome & Autism Dual Diagnosis Group serves families in Missouri and Illinois. Contact Linda Kamphorst at linda@dsagsl.org or (314) 833-8214.
- DSAGSL Black Family Network serves families in Missouri and Illinois. Contact Makini Anwisye at makini@dsagsl.org or (314) 833-7586.