Financial Assistance and Grant Programs Resources
The Social Security Administration (SSA) offers toolkits for people with sickle cell disease and professionals navigating the disability application and evaluation process. The toolkits provide detailed information, examples of the types of medical evidence required for individuals with sickle cell disease, and tips to help with the disability application and evaluation process:
SourceAmerica’s Job Board is a resource for job seekers with disabilities and direct service professionals who help job seekers fulfill their work and career goals. SourceAmerica provides a nationwide network, support and tools to find the job that matches your skills and abilities. Their dedicated job board includes:
- A job search tool
- Resume builder
- Career matching and training resources
- Mentorship opportunities
Southern Illinois Healthcare Foundation (SIHF Healthcare)
Southern Illinois Healthcare Foundation (SIHF Healthcare) provides mental health, healthcare and health insurance enrollment assistance. SIHF Healthcare offers dedicated primary care providers and health centers in various communities. It also accepts most insurance plans and offers a sliding fee scale so everyone can access quality care.
SIHF Healthcare offers community health centers and resources in Alton, Arthur, Belleville, Bethalto, Bunker Hill, Centreville, Charleston, Collinsville, East St Louis, Effingham, Fairmont City, Granite City, Greenup, Mattoon, Millstadt, O’Fallon, Olney, Red Bud, Salem, Swansea and Vandalia. Resources include:
- Primary care provider services
- Free blood pressure machines
- Health education and promotion
- Health insurance enrollment assistance
- Help with locating similar services statewide at (618) 646-2545 or chwprogram@sihf.org
Southern Illinois University Center for Autism Spectrum Disorders in Carbondale
The Center for Autism Spectrum Disorders (CASD) at Southern Illinois University is an interprofessional training and research center providing information and services to area residents with autism spectrum disorder (ASD) and their families. CASD offers ASD screenings, clinical services for children, adolescents and adults, webinars and support.
CASD faculty and students provide a variety of training and services, many at no cost to families and their children. Help is available in the following areas:
- Speech/language
- Social skills
- Emotional-behavioral concerns
- Toileting
- Sleep
- Picky eating and more
For more information, call (618) 453-7130 or email autism@siu.edu.
Spanish Coalition for Housing (SCH)
The Spanish Coalition for Housing (SCH) seeks to build generational wealth through housing counseling, financial education, advocacy and by connecting low-to-moderate income households to resources that create housing stability, homeownership and economic mobility. Services are based in Chicago and include workshops, homebuyer education, homeowner education and counseling, landlord certification and more. SCH programs also include:
- Financial education and coaching
- Rental and mortgage help
- Utility assistance
- Health and housing
Spanish Language Resources for Families & Children Who are Deaf or Hard of Hearing
Hands & Voices (Manos y Voces): Unbiased parent-to-parent support and Spanish-language resources for families and children who are Deaf or hard of hearing.
American Speech-Language-Hearing Association (La Asociación del Habla, Lenguaje y Audición): The organization provides Spanish-language information for the public and families with children who are deaf or hard of hearing.
Gallaudet University (Resources for Hispanic Deaf and Hard of Hearing Population): Resources providing contacts, publishers/distributors, and online links to assist Spanish-speaking individuals who are deaf or hard of hearing.
Special Camps Overnight Camps for Children, Youth and Adults with Developmental Disabilities
Special Camps provide opportunities for children and adults with intellectual disabilities to experience overnight camp. Special Camps are volunteer-run and offer trained staff and 24-hour nursing for children and adults with disabilities who could not otherwise attend a similar camp due to physical, medical or developmental needs. Financial scholarships are available to campers in need.
Campers can make friends, increase independence and try new activities. Special Camps take place each year at Camp Red Leaf in Ingleside.
Camp registration typically opens in early February. For questions, please contact Colleen McDonald at (630) 690-0944 or colleen.scamps@icloud.com.
Equip for Equality has a toll-free Special Education Helpline to help families get appropriate education services for their children. The Helpline can assist by providing:
- Someone to talk to about your questions and concerns
- Information sheets on frequently asked questions
- Sample letters and forms
- Referrals
- Other assistance as needed
Contact the Helpline at 1-866-KIDS-046 (1-866-543-7046) or specialed@equipforequality.org.
Special Father’s Network is a dad-to-dad mentoring program for fathers raising children with special needs.
The program connects new fathers with special needs children to another father (a Mentor Father) who has experienced a similar situation. The program matches Mentor Fathers as closely as possible based on the child’s special needs, gender, ethnicity, socioeconomic group and relationship to the child e.g., .father, stepfather, grandfather).
The Special Father’s Network is available through the 21st Century Dads Foundation, which raises awareness and resources for greater father involvement and seeks to inspire dads to be present, caring and nurturing.
Special Needs Chicago Transportation Services
Special Needs Chicago provides individuals with physical and/or cognitive challenges throughout Chicago and the suburbs with wheelchair-accessible transportation.

