Family Support Resources
Thumbuddy Special is a non-profit organization that was started by a group of special education teachers and therapists to raise money to provide adaptive equipment for children with special needs.
Thumbuddy Special supplies equipment such as wheelchairs, walkers, bath chairs, adapted bikes, ramps and computers. In addition, the nonprofit offers scholarships to children to attend local special recreation camps in the summer.
Travel Guide for Children with Medical Complexity
Traveling with a child with medical complexity can be challenging. With extra planning, a family vacation can be a memorable and enjoyable experience. This travel guide from the Courageous Parents Network offers practical advice on choosing a location, what and how to pack the medical supplies your child needs, tips for traveling by car and airplane, and what precautions to take should your child have a medical emergency while on vacation.
The guide is available in English and Spanish.
UCP – Center for Disability Services
UCP – Center for Disability Services (UCP-CDS) in Joliet serves individuals with severe, multiple disabilities including autism, epilepsy, traumatic brain injury, orthopedic impairment and other developmental disabilities. UCP-CDS provides its services in a five-county area including Will, Kankakee, Grundy, Kendall and Iroquois.
UCP-CDS also provides in-home respite for families of individuals with developmental disabilities. Participants enrolled in the In-Home Respite Program may receive up to 360 hours per year. The participant cannot be enrolled in a state waiver program. The family must find their own respite provider and be located in Will or Grundy counties. For more information, contact Kassandra Farley at (815) 744-3500, extension 202.
UCP Seguin of Greater Chicago is a charitable not-for-profit agency serving individuals with disabilities in metropolitan Chicago and beyond.
Its services include employment and community day services for adults, residential services for adults, children’s foster care, assistive technology and accessibility services, and more.
UIC The Resource Center for Autism and Developmental Delays
UIC The Resource Center for Autism and Developmental Delays (RCADD) provides support for those who care for, teach and serve children with an autism spectrum disorder or other developmental delays. RCADD serves families currently enrolled in an Early Head Start or Head Start program as well as others throughout the Chicagoland area.
Anyone can also visit RCADD’s website for:
- Free autism trainings/webinars in English and Spanish
- Printable visuals
- Activity ideas
Understanding Inclusion Online Series for Parents of Young Children With Disabilities
Early CHOICES offers a free, online series for parents of young children with disabilities, practitioners, educators and administrators in Early Intervention or early childhood programs. The Understanding Inclusion series covers everything from defining inclusion to dreaming big for your child and includes:
- Short videos
- Activities to promote inclusion
- Topic guides to support you in reflection and resource gathering
Flyers outlining the series’ details are available in English and Spanish.
Understood is a nonprofit dedicated to helping people with learning and thinking differences thrive in school, at work and throughout life. Understood raises awareness about dyslexia, attention-deficit/hyperactivity disorder (ADHD) and neurodiversity by sharing personal stories and providing resources for understanding behaviors, supporting learning, building everyday skills and exploring careers.
Understood’s resources include:
- Fact sheets on myths, ADHD, bullying and more
- Toolkits
- Communication strategies for all stages of life
- Podcasts featuring personal stories and perspectives
United Cerebral Palsy (UCP) promotes a life of inclusion and provides resources for individuals with cerebral palsy and other disabilities, their families and communities.
The UCP website has resources on topics including assistive technology, housing and home modification, travel and transportation, education, caregiving and more. You can also find UCP affiliates in the state of Illinois.
Variety – The Children’s Charity of Illinois
Variety of Illinois’ mission is to improve the quality of life for children with disabilities by providing the equipment and experiences needed to reach their highest potential.
Its programs include Variety at Play, which offers inclusive, accessible activities for the whole family; Kids on the Go that provides mobility equipment not covered by insurance for children with disabilities; and Live to Achieve that encourages participation and excellence in adaptive sports.
Violence Prevention and Support Resources
The Illinois Department of Public Health put together this list of violence prevention and support resources.
Topics covered include mental health and crisis support, violence prevention and intervention support, and report of child abuse or abuse of an older adult or adult with a disability.
