DSCC Fact Sheets Resources
Preparing For College When You Have Congenital Heart Disease
Going to college is an exciting time filled with new friends and experiences. When you have congenital heart disease (CHD), it can be overwhelming or tempting to put your care on the back burner. It’s very important that you stay in care and are as prepared as possible.
The Adult Congenital Heart Association provides this resource with tips to help you maintain good health while you further your education.
Progress Center for Independent Living Serving Suburban Cook County
The Progress Center for Independent Living serves over 133 municipalities throughout suburban Cook County. It is a community-based, non-profit, non-residential service and advocacy organization operated for people with disabilities, by people with disabilities. Progress Center provides a variety of training and education services, housing assistance, and tools and resources for people with disabilities to live independently in their own homes. These include:
- Youth transition to adulthood program
- Independent living skills training
- Peer counseling
- Housing assistance
- Deaf services
- Braille classes
- Radio Independent Living 24/7
- Project Fire Buddies is a nonprofit group of Chicago-area firefighters and first responders who find ways to support and spread joy to children with serious illnesses and their families.The project volunteers organize toy drives, bring Haloween candy to children who are too sick to trick-or-treat and invite kids to local firehouses. Volunteers also visit with their fire buddies at home to play games, read books, bring gifts for special occasions and more.Project Fire Buddies started with the Oak Forest Fire Department but has grown to include more than 20 departments.
Project LEAP – Launching Equity in Access to Preschool
Equip for Equality’s Project LEAP (Launching Equity in Access to Preschool) helps children with disabilities from birth to 6 get Early Intervention and early childhood special education services so that they’re ready to succeed in school. Project LEAP can help your child:
- Move from Early Intervention to early childhood education
- Receive the tests needed for special education services
- Access behavior supports and assistive technology
Project LEAP can also go to your child’s Individual Education Program (IEP) meetings, mediation and due process hearings in select cases.
For more information or to schedule a time to talk, please contact Equip for Equality at EFEProjectLEAP@equipforequality.org or call the Equip for Equality Special Education hotline at 1-866-KIDS-046 or (866) 543-7046. You can also complete an online intake form at www.equipforequality.org/get-legal-help-from-efe/.
Project Mobility is a nonprofit organization that offers recreational events using specialized bicycles for people with disabilities. Its professional staff works with families, rehabilitative professionals and organizations to promote better health, independence, and most of all the freedom of mobility for people with physical disabilities.
Project Mobility also does an Adaptive Bike Giveaway.
Project SUN in Kankakee County
Project Strong and Unified Network (Project SUN) is a family-driven, youth-guided and community-based system of care in Kankakee County. Project SUN provides resources, training and community education about children’s behavioral health and other child and family wellness topics. Its services include:
- Helping families navigate their children’s mental, emotional and behavioral health systems of care through trained staff and volunteer Community Navigators
- Supporting families on their journey by training peer parent mentors and companions and offering appreciation events for caregivers
- Assisting parents and youth to gain the skills necessary to actively participate in their care planning and delivery
- Offering professional development training for mental, emotional and behavioral health service providers
- Providing community education with a focus on children and their families
Project Sweet Peas is a national non-profit organization providing support to families and caregivers of premature or sick infants and families impacted by pregnancy and infant loss. Programs include neonatal intensive care unit (NICU) care packages, remembrance memory boxes, peer-to-peer support groups and NICU family financial aid, hospital events, remembrance vigils and educational materials.
Project Sweet Peas also offers:
- A NICU Family Navigation & Support (Project Sweet Peas) group on Facebook
- Journal workshop for NICU and bereaved parents
- Downloadable mental health worksheets
- A list of area locations nationwide
Protected Tomorrows is an advocacy and financial advisory organization supporting families of individuals with special needs and disabilities. The organization provides compassionate guidance to help individuals and caregivers navigate government benefits, legal considerations, future care planning and financial strategies for a more fulfilling future for everyone. Protected Tomorrows’ resources include:
- Monthly Protected Tomorrows Parent University online classes
- Step-by-step, comprehensive planning tools
- Individual and family services
- A Resource Hub with information, articles and videos
For questions, please contact Protected Tomorrows using the online contact form.
Puentes de Esperanza (Bridges of Hope)
Hoyleton Youth & Family Services‘ Puentes de Esperanza (Bridges of Hope) serves Spanish-speaking families in Clinton, Madison, Monroe, Randolph and St. Clair counties. Puentes de Esperanza connects Hispanic families to community resources, including interpretation and translation, finding employment, immigration and citizenship information and other resources.
Puentes de Esperanza also:
- Partners with the Illinois Coalition for Immigrant and Refugee Rights (ICIRR) to help immigrants know their rights
- Hosts mobile events with the Illinois Secretary of State Department of Motor Vehicles
QCA Adaptive Sports Association in Moline
QCA Adaptive Sports Association is a non-profit, volunteer-led organization in the Quad City area offering a safe, accessible and accepting environment for people with physical disabilities to enjoy adaptive sports and recreational opportunities. Sports programs include:
- Wheelchair basketball
- Tennis
- Rowing
- Softball and more

