DSCC Fact Sheets Resources
Physical Restraint, Time Out and Isolated Time Out (RTO) Bill of Rights
The Illinois State Board of Education’s (ISBE) RTO Parent Bill of Rights is a resource for parents and guardians to help understand their rights, the rights of students, how to file a complaint and other important information related to physical restraint, time out and isolated time out in schools.
More details and helpful documents about restraint, time out and isolated time out, including multiple translations of the RTO Parent Bill of Rights, are on ISBE’s website.
The PKU Organization of Illinois provides resources and support to teens, adults and families with PKU and 16 allied disorders.
Their website includes information about understanding and managing phenylketonuria (PKU), diet, local resources, events, what to expect at different life stages and a PKU binder toolkit.
PKU Organization of Illinois Andrew Craig Memorial Scholarship
The PKU Organization of Illinois awards the Andrew Craig Memorial Scholarship annually to qualified individuals with phenylketonuria (PKU) or allied disorders. Eligible applicants may receive scholarships of up to $2,000. The scholarship applicant requirements include:
- Having PKU or an Allied Disorder diagnosis
- Currently residing in Illinois
- Enrolling to attend an accredited college, university or vocational school for the fall semester of the current calendar year
A student may receive more than one scholarship during their secondary education but not in consecutive years.
PKU Resources from University of Louisville School of Medicine
The University of Louisville School of Medicine website provides a wide range of PKU (Phenylketonuria) resources to support families.
The Family PKU Booklet provides information for families after a positive newborn screening. Using illustrations and clear language, the booklet helps make complicated, scientific information easier to understand.
The site also includes:
- Caregiver and school preparation tips
- Nutrient trackers
- Downloadable PHE and protein log templates
- Recipes and low protein food suppliers
- PKU community resources
Provides recreational opportunities for all residents. Offers diversified programs and activities.
Plan to Achieve Self Support (PASS)
The Plan to Achieve Self Support or PASS for people with disabilities is a written plan of action for getting a particular kind of job or starting a business offered by the Social Security Administration. The PASS allows you to earn more money to apply towards a work goal, without reducing your SSI benefits.
A portable medical summary is helpful for summarizing your medical information in one to two pages. You can use this summary across healthcare systems, including:
- With the emergency department
- In the transition to adult providers
- With your college campus health services and more
The summary can help provide quick and concise communication with all providers involved in your care as you transition to adulthood.
Postpartum Support International
Postpartum Support International (PSI) provides a worldwide network of peer support, information, professional trainings and coordinators in all U.S. states. Its mission is to promote awareness, prevention and treatment of mental health issues related to childbearing in every country worldwide. PSI has more than 400 local support volunteers who provide support, information, encouragement and connection with local providers and support groups.
PSI offers 50-plus free online support groups to connect with other parents, including groups for special needs and medically fragile parenting, birth trauma support, neonatal intensive care unit (NICU) postpartum parents and more. PSI also moderates closed Facebook groups for moms and dads.
PSI also has a helpline for anyone to get basic information, support and resources. You can call or text daily from 7 a.m. to 10 p.m. central standard time at:
- Call (800) 944-4773 for English and Spanish support
- Text in English to (800) 944-4773
- Text en Español to (971) 203-7773
Resources are available in English and Spanish.
Prairie State Legal Services is an organization that offers free legal services for low-income persons and those age 60 and over who have serious civil legal problems and need legal help to solve them.
There are 11 office locations serving 36 counties in northern Illinois. The resources page also provides references to self-help information.
Premier Kids: Primary Care at La Rabida Children’s Hospital
Premier Kids is a medical home program for children birth to age 6 with special needs. It provides primary care services for children with medically complex conditions and/or developmental delays. To make an appointment, call (733) 256-5700, ext. 2.
