DSCC Fact Sheets Resources
The Epilepsy Advocacy Network (EAN) seeks to optimize the quality of life of individuals with epilepsy and seizure disorders by promoting community education and awareness, self-advocacy and empowerment, and helping all individuals gain proper access to care. EAN services and supports include:
- Case coordination (epilepsy)/assistance with education services
- Clinic visits
- Support groups
- Financial, transportation and medication resources
- Yearly camp for people ages 8 to 24 with epilepsy
- Seizure response training
It is an affiliate agency of the Epilepsy Alliance of America.
Epilepsy Alliance America is a national organization providing support, care and service to those with epilepsy, their families, caregivers and communities. The organization’s services and supports include:
Epilepsy and Seizures 24/7 Helpline
The Epilepsy Foundation’s Epilepsy and Seizures 24/7 Helpline has trained information specialists to help answer your questions about epilepsy and seizures and provide you with help, hope, support, guidance and access to national and local resources. You can access the helpline in several ways:
- Online Help Form
- Phone (English): (800) 332-1000
- Phone (en español): (866) 748-8008
The helpline serves people living with epilepsy, caregivers and friends of someone with epilepsy and anyone who wants to learn more about epilepsy. It can provide information about current epilepsy treatment and alternative therapies, medication questions, support groups, seizure first aid, emotional support and more.
Epilepsy Foundation of Greater Chicago
The Epilepsy Foundation of Greater Chicago is a not-for-profit organization serving 44 counties in Illinois. It offers education, advocacy and case management to people living with epilepsy, their families and the communities in which they live.
The foundation’s client services include case management, programs for children and adults, epilepsy centers, support groups, employment, medications, and driving and transportation.
Epilepsy Foundation of Greater Southern Illinois
The Epilepsy Foundation of Greater Southern Illinois aims to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures and save lives. Its programs include epilepsy and seizure support services, home-based services, residential services, epilepsy education programs, support groups, Camp Roehr, a scholarship and more.
Its website also provides resources, including a New to Epilepsy Guide, a seizure calendar, a Professionals and Caregiver Guide, and more.
For questions or more information, please visit the Contact Page for the Southern Illinois Region Office and the Epilepsy Foundation of Greater Southern Illinois for coverage information and phone numbers.
Epilepsy Foundation of Greater Southern Illinois’ Camp Roehr
The Epilepsy Foundation of Greater Southern Illinois (EFGSI) hosts an annual, overnight camp for children and teenagers with epilepsy. Camp Roehr provides campers ages 6 to 17 with seven days of fun, building friendships and learning about living with epilepsy. Camp registration typically begins in mid-April. Participant requirements include:
- Living in Illinois or surrounding states
- Having a primary diagnosis of epilepsy and well-controlled seizures
- Being able to care for their own basic needs and ready for an overnight camp experience
Equestrian Connection in Lake Forest
Equestrian Connection provides therapy programs for children and adults with mental, emotional and physical challenges and disabilities. Programs include hippotherapy, therapeutic riding, art therapy, job training and more. Class instructors are clinically licensed occupational and physical therapists, experienced clinicians and instructors, and trained volunteers.
Programs are available in individual and group settings. For more information, call Equestrian Connection at (847) 615 8696.
Equip for Equality is an independent agency whose primary goal is protecting the civil and human rights of citizens with disabilities.
Equip for Equality offers assistance that includes:
- Self-advocacy assistance
- Legal services
- Monitoring
- Training
ERIC: Education Resources Information Center
ERIC is an online library of education research and information, sponsored by the Institute of Education Sciences of the U.S. Department of Education.
Etiquette: Interacting with People with Disabilities
People with disabilities are individuals with families, jobs, hobbies, likes and dislikes, and problems and joys. While the disability is an integral part of who they are, it alone does not define them.
RespectAbility offers tips and resources to educate the public about etiquette and interacting with people with disabilities. Featured information includes:
- A disability sensitivity training video from the D. C. Office of Disability Rights
- The United Spinal Association’s Disability Etiquette booklet (Spanish) (Chinese)