Resource Directory /

DSCC Fact Sheets Resources

  • The Autism Program of Illinois (TAP)

    The Autism Program of Illinois (TAP) Service Network is a collaboration of five universities and 10 organizations that together operate 20 centers across the state to provide services to children, families, educators, childcare providers, and medical professionals.

    Illinois residents can participate in TAP’s Advocating for Supports to Improve Service Transitions (ASSIST) Training Program. The training features twelve modules focused on helping families advocate for adult services on behalf of their child or young adult on the autism spectrum. Each module features an expert-led presentation and time for discussion.

    Topics  include:

    • Guardianship and alternatives to guardianship
    • Medicaid waiver services
    • Social Security benefits
    • Health insurance
    • Special needs trusts
    • Post-secondary education and employment

  • The Autism Program of Illinois (TAP) Service Center at CTF Illinois

    The Autism Program of Illinois (TAP) Service Center at CTF Illinois provides services and support to individuals with autism and developmental disabilities and their families. CTF Illinois family and community resource rooms are located in in both Charleston and Olney.

    TAP at CTF serves Coles, Cumberland, Edgar, Effingham, Fayette, Clark, Moultrie, Douglas, Shelby, Clay, Richland, Crawford and Lawrence counties. Services include:

    • Family nights and new diagnosis family orientation
    • Play groups for children under 3
    • Social skills and monthly support groups
    • Food and nutrition-related consultations

  • The Basics on PUNS

    PUNS is the name for the list of the people in Illinois with developmental disabilities who want or need services but do not yet have funding. Individuals who need help from the government to pay for needed Division of Developmental Disabilities Waiver services now, or in the future, should register for PUNS.

    The Arc of Illinois’ Life Span Program provides an overview of how to get on the PUNS list and how to check the approximate date when you may be selected.

    Get the Basics on PUNS handout in English

    Get the Basics on PUNS handout in Spanish

  • The Catalyst Center

    The Catalyst Center works with a broad range of partners to improve health care insurance coverage and address complex health care financing for Children and Youth with Special Health Care Needs (CYSHCN).

  • The Center for Chronic Illness

    The Center for Chronic Illness (CCI) is a nonprofit organization offering support and education to promote well-being and decrease isolation for people affected by chronic illness. CCI offers adults and teens living with chronic illness a variety of support groups and programs focusing on emotional well-being, health education and community. ​CCI provides:

  • The Center for Courageous Kids Summer Camps and Family Retreats

    The Center for Courageous Kids (CKC) offers free family retreat weekends and overnight summer camp sessions for youth ages 5 to 17 with complex medical conditions and disabilities. CKC welcomes children with a wide range of conditions, including heart/cardiovascular disease, blood disorders, sickle cell disease, spina bifida, and more. The camp provides 24-hour medical coverage, an on-site medical center, and program and medical staff with training and experience in all aspects of medical camping.

    The Center for Courageous Kids is open to youth ages 5 to 17 diagnosed with one of the illnesses/conditions it serves and immediate family members. To learn more about the camp, you can also:

  • The Center for Enriched Living

    The Center for Enriched Living (CEL) provides a wide range of services to enrich the lives of teens, adults and seniors with intellectual and developmental disabilities (IDD). CEL programs include social, recreational and employment programs, events, adult day programs, and mental health and wellness support to people with IDD, their families and caregivers.

    CEL is independently funded and partners with the community for donations, regular volunteers, advocacy and collaborations that support people with IDD.

    For questions, please contact (847) 948-7001 or info@CenterForEnrichedLiving.org.

  • The Center on Youth Voice, Youth Choice

    The Center on Youth Voice, Youth Choice is a national resource center for youth with disabilities. Youth Voice, Youth Choice provides self-advocates, their families and supporters with advocacy, teaching tools for alternatives to guardianship, plain language resources and more. It offers:

    • Videos and youth stories
    • Alternatives to guardianship tools with stories and resources to help make tough decisions
    • A plain language series featuring a wide variety of important topics
    • The Youth Ambassador Curriculum for building leadership and advocacy skills

  • The Chicago Lighthouse

    The Chicago Lighthouse is a social service organization serving the blind, visually impaired, disabled and veteran communities. It provides vision rehabilitation services, education, employment opportunities and assistive technology for people of all ages throughout Chicagoland. It also provides housing opportunities for income-eligible households for individuals with disabilities. National and statewide resources include help with college, brailler repair, employment, recreation, service animals and more.

    The organization’s Lader Family Scholarship Program is open to Illinois residents who are blind or visually impaired, as well as Chicago Lighthouse employees who are blind, visually impaired, have another disability or are veterans. You can learn more about the Lader Family Scholarship and other scholarship opportunities on the Chicago Lighthouse website.

  • The Colette Louise Tisdahl Foundation

    The Colette Louise Tisdahl Foundation provides support and financial help to families in crisis due to pregnancy complications, premature birth/neonatal intensive care unit stay and loss. This financial assistance may help cover:

    • Childcare
    • Medical bills
    • Transportation costs
    • Rent/mortgage and utilities
    • Post-loss/funeral/burial expenses
    • Grief counseling (individual, couple and family)

    Visit the Colette Louise Tisdahl Foundation website for more details.