Medical/Health and Wellness Resources
Children and Youth with Special Healthcare Needs in Emergencies
All children have unique needs in emergencies, but care for children with special healthcare needs is often more complex because of their various health conditions and extra care requirements. They may have a hard time moving from one place to another, urgent or constant medical needs, difficulty communicating or have trouble with transitioning to different situations. A disaster can present all these difficulties at once.
The CDC provides information on how to prepare and respond so you can help maintain calm and keep your family safe.
Children’s Burial Assistance (CBA) helps families honor their deceased children with a decent and proper burial. Families without life insurance or money saved to bury their deceased child, ages 1 through 17, may be eligible. CBA resources include:
- The “What To Do – The First 48 Hours of Your Child’s Death” guide
- A database of service providers
- Burial plots, urns and other in-kind gifts to offset the cost of a burial
Parents, legal guardians or family members may apply online for assistance. Please note: CBA does not provide financial assistance for funeral service fees or grave markers. Visit the CBA website for more details.
Children’s Craniofacial Association
Children’s Craniofacial Association (CCA) is a national, nonprofit organization providing resources to empower and give hope to individuals and families affected by craniofacial conditions. CCA resources include:
- Financial assistance
- Educational overviews and video library
- Craniofacial surgery care packages
- Resources for teachers and parents
Visit the Children’s Craniofacial Association website for more details.
Chinese American Service League
The Chinese American Service League (CASL) is a nonprofit agency with 40-plus years of experience educating youth, caring for seniors, training the workforce, placing immigrants on the path to citizenship and securing the housing and financial wellbeing for families and individuals in the Chicago Chinese community and beyond.
CASL has programs centered around children and youth development, senior wellness and independence, employment and financial empowerment, community and family wellbeing, Center for Social Impact and legal services.
Claire’s Place Foundation for Cystic Fibrosis Support
Claire’s Place Foundation is a non-profit organization providing support to children and families affected by cystic fibrosis (CF).
Its programs are focused on creating a better quality of life for people and their caregivers as well as emergency funding assistance during long hospital stays. Its programs include an Extended Hospital Stay Grant Program and the Support Families and Resources Program.
Cleft and Craniofacial Condition Resources
HealthyChildren.org, the parenting website of the American Academy of Pediatrics, provides articles and information for parents and caretakers of children with a cleft lip, cleft palate or craniofacial disorder.
ClinicalTrials.gov is a place to learn about clinical studies from around the world.
CMS Sickle Cell Disease Provider Toolkit
The Centers for Medicare & Medicaid Services (CMS) Sickle Cell Disease (SCD) Provider Toolkit provides help to strengthen the infrastructure across care settings and support the needs of people with SCD. The toolkit includes:
- How CMS program coverage can assist people with SCD
- General information about SCD
- Resources for individuals with SCD and those who support them
- SCD treatments, pain management and wellness
- Information for providers and community partners
- CMS Action Plan
Coloring Pages for Caregivers
UIC’s Division of Specialized Care for Children has created adult coloring pages to help caregivers relieve stress and practice mindfulness. Four designs are available in English and Spanish:
Lighthouse (Lighthouse Spanish)
Sunflowers (Sunflowers Spanish)
ComeUnity is a parent support website with resources on parenting children with special needs, adoption, child development and multiple lists of groups and organizations providing information on specific topics or areas.
Visit www.comeunity.com/index.html.