Medical/Health and Wellness Resources
Rare Sisters Batten Foundation
The Rare Sisters Batten Foundation (RSBF) supports the development of medical research for treatments and cures for CLN3 Batten Disease and also provides monetary assistance to families with children diagnosed with Batten Disease, a neurodegenerative disorder.
Families with children diagnosed with Batten Disease may apply with RSBF for financial help to cover a wide variety of needs. Funds are awarded on a case-by-case basis and contingent on the availability of funds.
RCADD Back-to-School Resources / Recursos para el regreso a clases
The Resource Center for Autism & Developmental Delays’ (RCADD) Virtual Resource Room offers back-to-school resources for parents/caregivers and their children with autism and/or neurodiversity. Resources in English and Spanish to help with a new school year include:
- Tip sheets- Hojas de consejos
- Schedules and routines materials- Horarios & rutinas
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Social stories- Historias sociales
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Visual supports – Apoyos visuales
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Structured activities- Actividades estructuradas
REACH Learning and Resource Hub
REACH Learning and Resource Hub provides free, virtual training to help educators, clinicians, parents and caregivers better support the mental health and resilience of the children and youth in their lives. The interactive, on-demand resources focus on:
- Trauma-responsive practices
- Personal and professional resilience
- Social-emotional awareness
- Self-care
Red Café Parent Support Group
Parents share information and ideas to help take care of themselves, raise strong children, and build strong relationships with their kids with disabilities.
1st Thursday of each month
6:00pm – 7:00pmTo register, call (309) 686-1177 or email parentsupport@ci.easterseals.com.
Learn about the newborn screening information in Illinois and bordering states in Region 4.
This resource directory from the Illinois Early Learning Project provides contact information, descriptions of programs, state agencies, and non-profit organizations in Illinois that provide support for families of young children experiencing homelessness or housing insecurity.
The directory includes food resources, housing resources, clothing and diaper resources and more.
Resource Guide “When a Child Dies: Planning Acts of Love and Legacy”
The loss of a child is never easy. The Funeral Service Foundation’s free guide “When a Child Dies: Planning Acts of Love & Legacy” offers guidance, support and inspiration to families saying goodbye. Topics include:
- The funeral planning process
- Talking with children about death
- Ideas for planning a meaningful tribute
- Carrying forward and dealing with your grief
Resources for Inclusion in Physical Activity and Youth with Disability
The National Center on Health, Physical Activity and Disability (NCHPAD) compiled links to a multitude of resources related to children with disabilities and their inclusion in physical activities in this guide.
Resources to Help Children After a School Shooting
The National Research Center on Hispanic Children & Families provides a list of resources to help parents, caregivers and educators support children and youth after a school shooting.
Resources are available in both English and Spanish.
Respiratory Syncytial Virus (RSV) Fact Sheet for Parents
Respiratory syncytial virus (RSV) is a common respiratory virus that usually causes mild, cold-like symptoms. Most people recover in a week or two, but RSV can be serious, especially for infants and older adults.
The Illinois Department of Public Health provides this fact sheet for parents to help them understand how RSV spreads and how to prevent it.