Resource Directory /

Medical/Health and Wellness Resources

  • Parents of Extraordinary Children

    Parents of Extraordinary Children (PEXC) is a nonprofit that aims to inform, empower, support and help advocate for families of children and young adults with disabilities within the southeast side of Chicago.

    With the help of volunteers and representatives from city-wide organizations, PEXC provides opportunities for Individualized Education Program (IEP) training, learning to navigate the special education process, understanding terminology, initiating the process of evaluation,  the transition to adulthood and more.

    PEXC has a Sensory Space and Resource Center and offers an “All Inclusive Support Group” on a monthly basis for families.

    For more information, call (312) 600-5479 or email admin@pexc10thward.com.

  • Pediatric First Aid and Safety Training for Teachers and Caregivers

    The American Academy of Pediatrics’ “Pediatric First Aid and Safety Training for Teachers and Caregivers” online course is for anyone who works with or cares for infants and children. The six-unit training provides caregivers with an understanding of first aid and safety procedures, recognizing everyday medical emergencies and providing care for an injury or illness until professional help arrives.

    Each unit takes about an hour to complete. You can complete the course at your own pace. The course costs $25 and is available through March 30, 2028. It covers:

    • Administering mental health first aid
    • Effectively communicating with emergency responders
    • Disaster planning
    • Identifying and managing common pediatric medical emergencies
    • Using first aid equipment and child-specific procedures for cardiopulmonary resuscitation (CPR)

  • Pediatric Tracheostomy Tube Emergency Management Video

    In this video, nurses from Ann and Robert H. Lurie Children’s Hospital of Chicago describe and demonstrate emergency management for pediatric patients with tracheostomy (trach) tubes. The video covers:

    • Prevention and assessment of emergency situations
    • How to manage a mucous plug
    • How to replace a trach tube that has become dislodged
    • What to do if the trach tube is difficult to replace
    • When to provide manual ventilation using bag to trach tube, bag and mask to mouth, and mouth to mouth

  • Pediatrician Guidance on Telehealth

    Telehealth is a tool that can help connect your child to many different types of healthcare services using various types of technology, such as live, interactive audio and video and special diagnostic tools. Healthychildren.org provides tips for talking to your pediatrician and using telehealth effectively. The information is available in several languages.

  • Premier Kids: Primary Care at La Rabida Children’s Hospital

    Premier Kids is a medical home program for children birth to age 6 with special needs. It provides primary care services for children with medically complex conditions and/or developmental delays. To make an appointment, call (733) 256-5700, ext. 2.

     

  • Project Fire Buddies

    Project Fire Buddies is a nonprofit group of Chicago-area firefighters and first responders who find ways to support and spread joy to children with serious illnesses and their families.
     
    The project volunteers organize toy drives, bring Haloween candy to children who are too sick to trick-or-treat and invite kids to local firehouses. Volunteers also visit with their fire buddies at home to play games, read books, bring gifts for special occasions and more.
     
    Project Fire Buddies started with the Oak Forest Fire Department but has grown to include more than 20 departments.

  • Project LEAP – Launching Equity in Access to Preschool

    Equip for Equality’s Project LEAP (Launching Equity in Access to Preschool) helps children with disabilities from birth to 6 get Early Intervention and early childhood special education services so that they’re ready to succeed in school. Project LEAP can help your child:

    • Move from Early Intervention to early childhood education
    • Receive the tests needed for special education services
    • Access behavior supports and assistive technology

    Project LEAP can also go to your child’s Individual Education Program (IEP) meetings, mediation and due process hearings in select cases.

    For more information or to schedule a time to talk, please contact Equip for Equality at EFEProjectLEAP@equipforequality.org or call the Equip for Equality Special Education hotline at 1-866-KIDS-046 or (866) 543-7046.  You can also complete an online intake form at www.equipforequality.org/get-legal-help-from-efe/.

  • Project SUN in Kankakee County

    Project Strong and Unified Network (Project SUN) is a family-driven, youth-guided and community-based system of care in Kankakee County. Project SUN provides resources, training and community education about children’s behavioral health and other child and family wellness topics. Its services include:

    • Helping families navigate their children’s mental, emotional and behavioral health systems of care through trained staff and volunteer Community Navigators
    • Supporting families on their journey by training peer parent mentors and companions and offering appreciation events for caregivers
    • Assisting parents and youth to gain the skills necessary to actively participate in their care planning and delivery
    • Offering professional development training for mental, emotional and behavioral health service providers
    • Providing community education with a focus on children and their families

  • Questions and Answers About COVID-19 Vaccines

    Children’s Hospital of Philadelphia provides answers to some of the most common questions people are asking about COVID-19 and vaccines.

  • Rare Caregiver Respite Program

    The National Organization for Rare Disorders’ (NORD) Respite Program is for caregivers (parents, spouses, family members, or significant others) of a child or adult diagnosed with a rare disorder. The program provides financial assistance to allow caregivers a break to attend a conference, an event, or have an afternoon or evening away from caregiving.

    The Respite Program awards are granted to eligible individuals on a first-come, first-served basis. There is no fee to apply.

    For more information about this program, contact NORD at (203) 616-4328 or email CaregiverRespite@rarediseases.org.