Medical/Health and Wellness Resources
The Arc of Illinois Family-to-Family Health Information Center and Family Voices of Illinois provide this fact sheet on possible options for help with the cost of diapers for children, youth and adults with disabilities.
Digital Safety Resources from the Illinois Attorney General
Digital safety encompasses a wide variety of issues related to the use of computers, tablets, cell phones, games, apps and social media. The Illinois Attorney General’s “Online Safe, Online Smart” website provides resources for children, teenagers, parents and educators seeking information about digital safety.
Kids, teens, parents and teachers coping with cyberbullying and internet safety issues may also contact an Internet Safety Specialist at:
Disability Information and Access Line
The Disability Information and Access Line (DIAL) helps people with disabilities connect to local community resources that support independent living. Dial provides information on essential services such as transportation, housing support, disability rights, and more.
The hotline’s trained staff are available to:
- Help find local vaccination locations
- Set up a vaccination appointment
- Connect with local COVID testing options
- Connect callers to local services, such as accessible transportation, housing support, disability rights and other independent living resources
Call, text or videophone DIAL Monday through Friday from 7 a.m. to 8 p.m. at (888) 677-1199.
You can also email the hotline at DIAL@n4a.org or start an online chat with an information specialist.
You can also connect to an agent in American Sign Language.
Disability Resource Center in Joliet
The Disability Resource Center provides advocacy, peer support groups, S.K.I.L.L.S. independent living classes, visual impairment services, seminars, workshops and more for people with disabilities in Will and Grundy counties.
Programs also include:
- Deaf and hard of hearing services
- Information and referral (I&R) for accessible housing, where to buy assistive devices, how to secure a sign language interpreter and more
- Assistive technology for children up to age 23
- Personal assistance program and information
Disaster Preparedness for Children and Youth with Special Healthcare Needs
The American Academy of Pediatrics (AAP) provides information on how families of children with special healthcare needs can prepare for potential emergencies and disasters in their area and identify what each child would need to safely prepare for and cope with the disaster.
AAP provides emergency preparedness information and resources, including:
- Tips for helping children cope and adjust after a disaster
- Links to organizations like the Cincinnati Children’s Hospital offering booklets, checklists and other resources you can print or download
- Videos on preparing for an emergency or potential disaster
Do It for the Love inspires hope and healing through music. The non-profit organization grants live concert wishes for people with life-threatening illnesses, children with severe challenges and wounded veterans. You can apply for yourself or your child or nominate someone for a live music wish.
Since 2009, American Association of Orthodontists (AAO) members have volunteered to provide high-quality orthodontic care for children of families with financial need.
Visit the AAO website for information on eligibility and how to apply.
Down Syndrome Association of Greater St. Louis (DGAGSL) and Metro-East/Southern Illinois Chapters
The Down Syndrome Association of Greater St. Louis (DGAGSL) serves, supports and celebrates the lives of individuals with Down syndrome and their families. DGAGSL and its chapters provide educational programs, resources and events to help increase awareness and connect families with the help they need for every stage of their child’s life.
These DGAGSL community groups provide support and coordinate events in southern Illinois and the greater St. Louis area:
- DSAGSL Metro-East Illinois Community Group serves Belleville, O’Fallon, Shiloh, and surrounding areas. Contact Abigail Bosslet at abigail@dsagsl.org or call (314) 833-7560.
- DSAGSL Southern Illinois Community Group serves Carbondale, Creal Springs and surrounding areas. Contact Abigail Bosslet for information.
- DSAGSL Down Syndrome & Autism Dual Diagnosis Group serves families in Missouri and Illinois. Contact Linda Kamphorst at linda@dsagsl.org or (314) 833-8214.
- DSAGSL Black Family Network serves families in Missouri and Illinois. Contact Makini Anwisye at makini@dsagsl.org or (314) 833-7586.
- The National Dance Institute has a series of YouTube videos of their inclusive dance program called the DREAM Project (Dancers Realize Excellence through Arts and Movement). The project provides children with disabilities the opportunity to dance and perform. Each dancer is encouraged to achieve their best through teamwork, creativity, empathy and discovery.
Drugwatch.com includes up-to-date information about prescription and over-the-counter medications and details about associated drug side effects to aid in the protection of patients and consumers.